- Posted Monday May 13, 2013
Afternoon event at Monastery in Mesa supports Mylee Grace Research Fund
PHOENIX, Ariz. - May 13, 2013 - Mitochondrial disease took the life of 5-year-old Mylee Grace of Phoenix, but a fundraiser in her memory for the Translational Genomics Research Institute (TGen) could change the outlook for other children in the future.
A barbecue and live music concert is planned from 12-4 p.m. Sunday, May 19, at the Monastery, 4810 E. McKellips Road in Mesa, to raise funds for The Mylee Grace Research Fund for Rare Childhood Disorders.
That fund supports groundbreaking genetic and genomic research at TGen's Center for Rare Childhood Disorders (C4RCD).
The fundraiser is sponsored by Jayse's Mito Rascals, a group built on efforts to help 7-year-old Jayse Rylan Monty of Chandler. He is another child with mitochondrial disease, which is one of a class of neurological disorders that can lead to physical and cognitive disabilities by altering the function of the cell's powerhouse, or mitochondria.
"We invite everyone to come out and join us for great food and drink, great music and great fun with lots of family activities in a place famous for volleyball, horseshoes and more," said Jamie Monty, Jayse's mother.
Music will be provided by Mikel and Meridith of the The Sugar Thieves; the band Articles; and the Bad Cactus Brass Band.
"This fundraiser is for such an important cause: the health of children with rare disorders that too often go neglected," said Sara Eaton, Mylee Grace's mother. "We felt that TGen's Center for Rare Childhood Disorders provides hope for children who have had no help."
Food tickets are $7; beer and wine tickets are $5. The dog-friendly event also will include more than a dozen vendors, a silent auction and a raffle, including a two-night stay at Arizona Grand Resort, men's and women's golf clubs, and a foursome at Rancho Manana Golf Club.
Reserve your table by contacting Jamie Monty at [email protected] or 480-266-7255.
Find out more about TGen's Center for Rare Childhood Disorders at www.c4rcd.org.
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Translational Genomics Research Institute (TGen) is a Phoenix, Arizona-based non-profit organization dedicated to conducting groundbreaking research with life changing results. TGen is focused on helping patients with cancer, neurological disorders and diabetes, through cutting edge translational research (the process of rapidly moving research towards patient benefit). TGen physicians and scientists work to unravel the genetic components of both common and rare complex diseases in adults and children. Working with collaborators in the scientific and medical communities literally worldwide, TGen makes a substantial contribution to help our patients through efficiency and effectiveness of the translational process. For more information, visit:www.tgen.org.
TGen Senior Science Writer