Tissue Donation for DIPG/DMG Research: An Act of Courage and Defiance
DIPG/DMG tumor tissue is a gift from your family to our TGen family to give hope and answers to future families facing this diagnosis. With this gift, our scientists can conduct multiple studies to increase understanding of DIPG/DMG.
Your child’s legacy will help future DIPG/DMG patients. They will not be forgotten.
Frequently Asked Questions (FAQs)
What is the purpose of this tissue donation?
Deep genomic analysis of the patient’s tumor compared against their normal tissue will be performed. As additional cases are studied, a better understanding of the molecular subtypes of DIPG/DMG will emerge and inform strategies for tailoring treatment to best match interventions with an individual patient’s disease.
How do we donate tissue to TGen?
Once you complete the specimen release form, TGen will reach out to the facility that is storing your child’s tissue samples. We will coordinate the shipment of samples to TGen and there will be no cost to you or the facility/organization that collected the tissue.
When can we donate tissue to TGen?
TGen can conduct genomic analysis on tumor tissue that is collected by biopsy or that is donated after the participant’s passing. Families can request that tissue be shared with TGen at any time before or after the participant passes away. TGen will not request the tissue samples until after the participant has passed away.
How are the expenses of the research covered?
Generous donors support the ongoing work to “Move the Needle” against DIPG/DMG. In many instances, the availability of tumor tissue specimens establishes unique opportunities for peer-reviewed grant awards that also support the research. TGen will cover all shipping and handling costs of your loved one’s tissue donation. Participating in this study will not include any additional costs for you.
Will I be able to find out the results from any research on the tissue?
Circumstances permitting, we may be able to return research results to families of participants.
How do I enroll?
Please visit www.tgen.org/dipg and click “To View the Tissue Donation Study Release Form and Enroll.” If you choose to enroll after viewing the release form, you can do so using the DocuSign link on the page. You will then be contacted by the Clinical Research Coordinator.
For more information, please contact the Clinical Research Coordinator at [email protected] or 1.602.343.8653