You are one click away from the Multiple System Atrophy (MSA) Research Registry page.
By completing the MSA Research Registry page you give the Translational Genomics Research Institute (TGen), permission to contact you with more information related to research, and research participation.
It is important to know that you are not enrolling in a research study at this time; you are enrolling into a registry database. If/when you become eligible for a study, we will ask you to sign a consent form that outlines in detail the nature of the research study, including any potential risks and benefits.
Your Privacy Matters
Because we value your participation and want to respect your privacy, access to the database is limited to MSA coordinators and registry administrators, who will provide you with specific research information if/when you qualify, and contact you when new research opportunities become available.
By clicking continue, you acknowledge that you have read and understood the above statement.
If you are a spouse or legal guardian filling this form out on behalf of an MSA patient, all the information we are seeking on this form is related to the patient/participant.
Your contact information will go directly to the Clinical Research Coordinator at TGen. TGen strictly adheres to established confidentiality procedures that are intended to protect the identity of research participants. The Registry will not disclose personal information to parties outside the MSA registry process. All data samples will be coded with a unique identifier while at TGen. All contact information is protected at all times
If you would like to contact the Clinical Research Coordinator, please email firstname.lastname@example.org.