Hear Their Stories

Hear Their Stories

TGen's Center for Rare Childhood Disorders, C4RCD TM Research Program, is giving hope to children and their families where once there was none.

Raising a Child with a Rare or Undiagnosed Condition December 17 2021 /patients/center-for-rare-childhood-disorders/stories/raising-a-child-with-a-rare-or-undiagnosed-condition/
Connecting with Peers: Powerful Support for "Rare Parents" November 12 2021 /patients/center-for-rare-childhood-disorders/stories/connecting-with-peers-powerful-support-for-rare-parents/
Episode 42: An Inside Look at the World of Rare Disease Research October 27 2021 /patients/center-for-rare-childhood-disorders/stories/episode-42-an-inside-look-at-the-world-of-rare-disease-research/
Does Your Child Have an Undiagnosed Disorder? Consider Doing These 5 Things October 21 2021 /patients/center-for-rare-childhood-disorders/stories/does-your-child-have-an-undiagnosed-disorder-consider-doing-these-5-things/
Resources for Parents of Children with Rare Conditions September 23 2021 /patients/center-for-rare-childhood-disorders/stories/resources-for-parents-of-children-with-rare-conditions/
Self Care for Caregivers of Children with Rare Childhood Conditions September 17 2021 /patients/center-for-rare-childhood-disorders/stories/self-care-for-caregivers-of-children-with-rare-childhood-conditions/
5 Things to Know if You Have a Child with a Rare or Undiagnosed Condition August 09 2021 /patients/center-for-rare-childhood-disorders/stories/5-things-to-know-if-you-have-a-child-with-a-rare-or-undiagnosed-condition/
Finding Treatments, Finding Hope July 06 2021 /patients/center-for-rare-childhood-disorders/stories/finding-treatments-finding-hope/
9 Things to Know About Whole Genome Sequencing May 01 2021 /patients/center-for-rare-childhood-disorders/stories/9-things-to-know-about-whole-genome-sequencing/
When Cold Case Reviews Reveal New Information April 29 2021 /patients/center-for-rare-childhood-disorders/stories/when-cold-case-reviews-reveal-new-information/
Providing Hope for Arizona Families April 14 2021 /patients/center-for-rare-childhood-disorders/stories/providing-hope-for-arizona-families/
Identifying Rare Childhood Disorders Through Genomics April 01 2021 /patients/center-for-rare-childhood-disorders/stories/identifying-rare-childhood-disorders-through-genomics/
Episode 35: Diagnosing Rare Disorders February 23 2021 /patients/center-for-rare-childhood-disorders/stories/episode-35-diagnosing-rare-disorders/
Tuberous Sclerosis Complex January 01 2021 /patients/center-for-rare-childhood-disorders/stories/tuberous-sclerosis-complex/
TGen-USC Researchers Link Sisters' Paralysis to an 'Extremely Rare' Genetic Variant November 14 2019 /patients/center-for-rare-childhood-disorders/stories/tgen-usc-researchers-link-sisters-paralysis-to-an-extremely-rare-genetic-variant/
TGen Team Links Gene to Children with Physical and Intellectual Disabilities August 15 2019 /patients/center-for-rare-childhood-disorders/stories/tgen-team-links-gene-to-children-with-physical-and-intellectual-disabilities/
TGen-led Study Shows Mutated Gene is Likely Cause of 3-Year-Old Girl's Severe Disorder July 23 2018 /patients/center-for-rare-childhood-disorders/stories/tgen-led-study-shows-mutated-gene-is-likely-cause-of-3-year-old-girls-severe-disorder/
TGen's 'Medical Miracle' — Now Wheelchair-Free — Celebrates 13th Birthday August 07 2013 /patients/center-for-rare-childhood-disorders/stories/tgens-medical-miracle-now-wheelchair-free-celebrates-13th-birthday/