Hear Their Stories

Hear Their Stories

TGen's Center for Rare Childhood Disorders, C4RCD TM Research Program, is giving hope to children and their families where once there was none.

Resources for Parents of Children with Rare Conditions September 23 2021 /patients/center-for-rare-childhood-disorders/stories/resources-for-parents-of-children-with-rare-conditions/
Self Care for Caregivers of Children with Rare Childhood Conditions September 17 2021 /patients/center-for-rare-childhood-disorders/stories/self-care-for-caregivers-of-children-with-rare-childhood-conditions/
5 Things to Know if You Have a Child with a Rare or Undiagnosed Condition August 09 2021 /patients/center-for-rare-childhood-disorders/stories/5-things-to-know-if-you-have-a-child-with-a-rare-or-undiagnosed-condition/
Finding Treatments, Finding Hope July 06 2021 /patients/center-for-rare-childhood-disorders/stories/finding-treatments-finding-hope/
9 Things to Know About Whole Genome Sequencing May 01 2021 /patients/center-for-rare-childhood-disorders/stories/9-things-to-know-about-whole-genome-sequencing/
When Cold Case Reviews Reveal New Information April 29 2021 /patients/center-for-rare-childhood-disorders/stories/when-cold-case-reviews-reveal-new-information/
Providing Hope for Arizona Families April 14 2021 /patients/center-for-rare-childhood-disorders/stories/providing-hope-for-arizona-families/
Identifying Rare Childhood Disorders Through Genomics April 01 2021 /patients/center-for-rare-childhood-disorders/stories/identifying-rare-childhood-disorders-through-genomics/
Tuberous Sclerosis Complex January 01 2021 /patients/center-for-rare-childhood-disorders/stories/tuberous-sclerosis-complex/
TGen-USC Researchers Link Sisters' Paralysis to an 'Extremely Rare' Genetic Variant November 14 2019 /patients/center-for-rare-childhood-disorders/stories/tgen-usc-researchers-link-sisters-paralysis-to-an-extremely-rare-genetic-variant/
TGen Team Links Gene to Children with Physical and Intellectual Disabilities August 15 2019 /patients/center-for-rare-childhood-disorders/stories/tgen-team-links-gene-to-children-with-physical-and-intellectual-disabilities/
TGen-led Study Shows Mutated Gene is Likely Cause of 3-Year-Old Girl's Severe Disorder July 23 2018 /patients/center-for-rare-childhood-disorders/stories/tgen-led-study-shows-mutated-gene-is-likely-cause-of-3-year-old-girls-severe-disorder/
TGen's 'Medical Miracle' — Now Wheelchair-Free — Celebrates 13th Birthday August 07 2013 /patients/center-for-rare-childhood-disorders/stories/tgens-medical-miracle-now-wheelchair-free-celebrates-13th-birthday/