TGen's Center for Rare Childhood Disorders, C4RCDTM Research Program, is giving hope to children and their families where once there was none. 

Balancing Holiday Joy and Medical Appointments:  Managing Time and Expectation
Balancing Holiday Joy and Medical Appointments: Managing Time and Expectation

Discover tips for balancing holiday joy with the demands of caregiving for a child with a rare disease. Learn how to prioritize, plan, and create meaningful moments this season.


Tuesday, November 26, 2024
The Role of Specialized Centers in Treating Rare Pediatric Diseases
The Role of Specialized Centers in Treating Rare Pediatric Diseases

Navigating the healthcare system when your loved one faces a rare or chronic illness can feel overwhelming. Specialized pediatric centers, like TGen’s Center for Rare Childhood Disorders, offer families more than just expert treatment.


Thursday, September 26, 2024
The Power of Genomic Sequencing in Unraveling Rare Pediatric Conditions
The Power of Genomic Sequencing in Unraveling Rare Pediatric Conditions

Genomic sequencing can provide a definitive diagnosis not detectable through conventional tests.


Friday, August 23, 2024
The Power of Genomic Sequencing in Unraveling Rare Pediatric Conditions
The Power of Genomic Sequencing in Unraveling Rare Pediatric Conditions

Genomic sequencing can provide a definitive diagnosis not detectable through conventional tests.


Friday, August 23, 2024
The Journey to Diagnosis:  Navigating the Challenges of Undiagnosed Conditions in Children
The Journey to Diagnosis: Navigating the Challenges of Undiagnosed Conditions in Children

What to Expect on the Overwhelming Journey to a Potential Diagnosis and Resources to Help Guide You Through the Challenging Times


Friday, July 19, 2024
Early Intervention is Crucial for Better Outcomes for Children With Rare Diseases
Early Intervention is Crucial for Better Outcomes for Children With Rare Diseases

Early diagnosis. Timely treatment. The difference can greatly impact your child's quality of life.


Friday, June 21, 2024
How Symptoms of Rare Diseases Can Mimic Common Conditions
How Symptoms of Rare Diseases Can Mimic Common Conditions

Unraveling the Complexity - Learn more about how to differentiate and the steps to take.


Tuesday, May 21, 2024
The Role of Genetics in Rare Pediatric Conditions: What Parents Need to Know
The Role of Genetics in Rare Pediatric Conditions: What Parents Need to Know

Explore genetic factors about your child's disorder and learn more about your child's specific condition.


Thursday, April 18, 2024
Emotional and Mental Well-Being for Parents of Children With Rare and Undiagnosed Conditions
Emotional and Mental Well-Being for Parents of Children With Rare and Undiagnosed Conditions

As a parent and caregiver, there may be specific hurdles you face, and finding effective ways to navigate them is crucial for your well-being.


Monday, March 18, 2024
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