Patient Resources
 

Patient Resources

There are a number of sites and resources for patients and families faced with a diagnosis of ACC. Below are a few that provide information, forums, clinical trials, and opportunities to connect with others who have similar questions and share the same concerns.

ACC Compassion Support Group
This group was formed to create a forum to offer emotional and spiritual support to victims of ACC and their loved ones. Members can ask questions and post comments regarding the treatment of ACC and it's emotional and psychological affects.
http://health.groups.yahoo.com/group/ACCompassion

Adrenal Cancer Support
The links and tools noted on this site have been gleaned from patient discussions on various ACC message boards.
http://www.adrenocorticalcarcinoma.org

Patient Power
Patient Power® is devoted to helping you and your family through knowledge, to get the best medicine and return to good health.
http://www.patientpower.info

CaringBridge
CaringBridge offers free, personal and private websites for people facing a serious health challenge. Using a CaringBridge webpage, patients and caregivers can share updates, post photos and receive messages of hope and encouragement through a guestbook.
http://www.caringbridge.org/

Cancer Support Community
1-888-793-9355
Education and support services for cancer patients and their families, including support groups, stress-reduction techniques, cancer education workshops, and more.
http://www.cancersupportcommunity.org/

ACC Guide from the American Cancer Society
www.cancer.org/acs/groups/cid/documents/webcontent/003081-pdf.pdf

ACC Facts and Information from the National Cancer Institute
www.cancer.gov/cancertopics/types/adrenocortical

People Living With Cancer
The best cancer care starts with the best cancer information. With more than 30,000 members who are leaders in advancing cancer care, the American Society of Clinical Oncology (ASCO) is the voice of the world's cancer physicians.
http://www.cancer.net/portal/site/patient

Our Mission

The mission of Kirsten’s Legacy is to provide valuable resources to patients and their families while working to cure ACC through identification of new therapies and advancing those discoveries, as quickly as possible, to clinical trials.

How to Get Involved

While ACC is one of most rare and lethal of endocrine cancers, it remains one of the least well funded. Please support our efforts to find new therapies as well as new means of preventing and curing this devastating form of cancer.