Sweet Hannah Millett of Scottsdale, Arizona, left this world, Dec. 26, 2016. She struggled with a disabling condition since birth, despite her parents' continuous efforts to ease her discomfort and find a cure.
Later in her life, TGen's Center for Rare Childhood Disorders discovered that Hannah had a genetic mutation that was the most likely cause of her physical dysfunction. They also learned that other children around the country and the world had the same mutation, and many of them shared some of the same symptoms. After her death, Hannah's family donated tissue samples to TGen so that others might be helped through their research of this disease.
Hannah touched the lives of her family, caregivers, friends, therapists and the medical community, including Dr. Vinodh Narayanan, a neurologist and Medical Director of the Center for Rare Childhood Disorders and Keri Ramsey, the Clinical Director of the center. In her 17 years, Hannah felt their love and care and enjoyed being among them. She passed away peacefully surrounded by loved ones.
She has left us with a sense of gratitude and privilege to have been part of her life. She was strong, brave, sweet, silly and loving, and she taught us so much about life. We will miss her physical presence but know her beautiful spirit is with us, and we are happy for her that she is free again!
If you would like to make a donation in honor of Hannah to support TGen's Center for Rare Childhood Disorders please click on the Donation Button.