Are you smarter than a seventh grader?
Although the complex scientific information pertaining to TGen’s research is very important, it is often not understood by the people that need to grasp the information the most: the families of the Center for Rare Childhood Disorders. The average adult has a reading level equivalent to a seventh grade education, and because of this, there may be a barrier between the families and TGen scientists who are striving to improve their care. To change this, I interviewed patients, parents, and scientists to develop a proper perspective of the research study and learn what was important to all groups. Using multi-media tools (specifically VideoScribe, Venngage and iMovie), I produced educational videos to explain four different modes of inheritance: De Novo, Dominant and Recessive, X-Linked, and Mitochondrial.
Then, I released a “Modes of Inheritance” SurveyMonkey to control groups to collect feedback on the quality and effectiveness of the videos. Information about highest education level were compared with results to questions about knowledge of the material prior to and after viewing the videos. Early analysis showed that knowledge improved in viewers of various education levels. After just one to three views of the videos, individuals said they could explain the material to others in their own words when they originally stated they knew very little about it. With this information, I am confident that these educational materials will be helpful in providing knowledge to the families about the possible origin of their child’s disorder, as well as improving patients understanding of their genetic information.