WAIT Is a Four-Letter Word

As parents scramble for solid information about their options, as well as the pros and cons of different treatments, TGen can offer compassionate assistance in presenting clinical trials as well as other treatment approaches that may be on the pre-clinical or early clinical path.  Our approach is twofold:

DIPG Atlas (n+1)

Genomic profiling of tumors increases our understanding of DIPG. This Atlas relies on families to donate tumor and normal tissue from their child with DIPG for analysis. Some questions this may answer:

  • How does my child’s tumor compare to other DIPG cases?
  • What molecular changes or structures underlie the behavior of this tumor?
  • Can a basis for response or failure of treatment be found?
  • Can we share this knowledge with others by preparing a case report with the treating physician?

Markers of DIPG Response

A major, unmet need in care for patients with DIPG is being able to determine whether the tumor is responding to current treatments. If families approve research use of tissue and medical images collected during care, at recurrence or postmortem, physicians and scientists will be able to understand better why tumors escape treatment so we can stay one step ahead of the disease.

Reports from the Scientists

These published research studies are written for doctors and scientists, but as a parent to a child with DIPG, you are welcome to read the material. If you have questions, please ask your physician. 

More About TGen & DIPG Research

Contact Information

You may also send a gift by mail to: TGen Foundation